Friday, 28 March 2014

Cystic Fibrosis - New Treatments

New treatments give hope to cystic fibrosis sufferers:


Laura Whelan reports on the fresh hope that double-lung transplants and a new drug called Kalydeco have brought to people living with the life-limiting condition. The 65 Roses National Awareness Week begins at the Cystic Fibrosis Conference in Galway this weekend.


The event coincides with the group's 65 Roses national awareness week which aims to raise awareness on lung transplantation and new drug therapies.

The two day conference will be addressed by a number of key speakers including Minister of State and Galway East TD Ciaran Cannon and GAA commentator Joe Brolly.

It takes place in the Galway Bay Hotel in Salthill on Friday and Saturday.

Chairperson of Cystic Fibrosis Galway Mary Lane Henehan says delegates will hear courageous stories from those who are coping with the disease.

Cystic Fibrosis Cystic Fibrosis is Ireland's most common genetically inherited disease. With 1100+ CF Patients, Ireland has the highest proportion of CF people in the world.
CF Ireland was established by a small dedicated group of parents in 1963 with the first meeting in Crumlin Children's Hospital. 2013 marked the 50th anniversary of the Association.

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